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Angeline mw's avatar

It makes me wonder what are the most common forces / reasons that move people in privilege to help make changes. That doesn’t place the minority or marginalised groups under further obligations. Sometimes it’s not until someone has a personal experience that they feel motivated to become an “ally” or advocate. Like a family member being neurodivergent or LGBTQ+ or other marginalised groups. In some ways social media has been a great driving force in promoting awareness and more spaces where people can articulate and share these kinds of views. But it’s not enough and we see it can be a big performative (if that’s the right word.) maybe as communities grow and come together they will contribute to a changing culture but it requires organisation and intention and determination at a time where people already feel overloaded overwhelmed and tends to fall on people already facing the struggle of being marginalised etc

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Nicola's avatar

I keep rereading this post - you've articulated my thoughts so well, both professionally as an OT in perinatal mental health team in a very deprived borough of London where marginalised birthing people are prescribed meds for 'mental illness' rather than tackle the daily realities of families living in one room in inadequate temporary accommodation. Never have I spent so much of my time and practice advocating for the people I work with and liaising with housing, education, DWP, immigration etc. Offering sertaline and a food bank voucher does not increase safety 🙄 Plus they're excluded from accessing psychological services because, I quote, "their social circumstances are too complex" - even though they are the very things contributing to their trauma...

And then personally, I was diagnosed as autistic last year at 42. Now things make much more sense and I can finally stop blaming myself for all the failed attempts at CBT for my extreme noise sensitivity - no amount of carefully planned exposure work will change my physiological response to everyone's barking dogs and year round hot tub parties that everyone seems to have where I live!! It's exhausting having to constantly make adaptations to survive in a neuro typical world when the courtesy is not returned - offering a 'quiet' shopping hour at the crack of dawn in my local shopping centre does not make my community neuro affirming! There's a lot of work that needs doing but I hope my two amazing autistic daughters have a slightly more understanding community - they give me the motivation to keep doing the work.

Sorry for the essay!

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